My Favorite Books

The Walking Drum
Ender's Game
The Hitchhiker's Guide to the Galaxy
The Curse of Chalion
The Name of the Wind
Chronicles of the Black Company
The Faded Sun Trilogy
The Tar-Aiym Krang

Thursday, April 4, 2024

Review: Holding It All Together When You're Hypermobile: Achieve a Better Life Experience with EDS, POTS, and Joint Instability

Holding It All Together When You're Hypermobile: Achieve a Better Life Experience with EDS, POTS, and Joint Instability Holding It All Together When You're Hypermobile: Achieve a Better Life Experience with EDS, POTS, and Joint Instability by Christie Cox
My rating: 4 of 5 stars
Performance: ***
Book: *****

A Helpful Guide to Living with a Chronic Condition

This book is a balanced look at coping with hypermobile Ehlers-Danlos syndrome (hEDS) and the associated comorbidities; the latter being what drew me to it as I have friends and family with POTS and gastroparesis, which are very common along with EDS. Some have managed there condition well and others not so well … and this book seems like it would be a great help for both. Unfortunately many of the resources are imbedded within the text with a few being out of date; it would have been better putting them into the companion pdf (which was missing for my audible) or better yet a public resource list on author’s website (which is still live). Regardless, there is still quite a lot of value to this fairly personal story about the author’s journey to better health, making this book a combination of inspiration/motivation and useful advice/tips for adopting the lifestyle changes required to manage a condition that will never completely go away. That by itself make this a worthy read for anybody struggling with any of these conditions.

Each chapter starts with some description and/or definitions about some aspect of the how and why the symptoms are what they are before the author goes into her own experience with trying to manage those symptoms … and across the book it is clear that the author have tried a lot of things, both conventional and controversial. Each time she reinforces the fact that everybody is different and just because it worked or didn’t work for her, doesn’t guarantee the same for others … and that before starting anything, it is very important that you coordination with your health care provider team. Each chapter closes with a quasi summary of recommendations (assess, act, affirm) followed by one or more positive self affirmations to encourage those following along her journey to keep moving forward to obtaining a better quality of life (because this may take awhile to achieve, but it is possible).

The chapters and sections in this work are:
  • Introduction: Straight from the Zebra’s Mouth (17m)
  • Part I: One Patient’s Perspective
    • Chapter 1: My Story (17m)
    • Chapter 2: EDS and Me (25m)
    • Chapter 3: Comorbidities of EDS (29m)
  • Part II: Coping with EDS
    • Chapter 4: Dealing with Pain (51m)
    • Chapter 5: Navigating the Medical System (45m)
    • Chapter 6: Miracles of the Modern Mindset (33m)
  • Part III: Learning to Heal
    • Chapter 7: Mastering Stress (22m)
    • Chapter 8: Managing Autonomic Dysfunction (24m)
    • Chapter 9: Mindfulness and Meditation (30m)
  • Part IV: Healing Habits for your Body
    • Chapter 10: Movement (12m)
    • Chapter 11: Meals and Minerals (14m)
    • Chapter 12: Massage and Physical Therapy (13m)
  • Part V Healing Habits for Your Soul
    • Chapter 13: Make Time for Self-Care (31m)
    • Chapter 14: Maintaining Relationships (18m)
    • Chapter 15: Mustering Up Support (26m)
  • Conclusion Making It (18m)

I was given this free advance review/listener copy (ARC) audiobook at my request and have voluntarily left this review.

#HoldingItAllTogether #AudibleGiveawaysGoodRdsGrp

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My Ratings Explained ...

  • [ ***** ] Amazing Read - Perfect story, exciting, engrossing, well developed complex characters, solid plot with few to no holes, descriptive environments and place settings, great mystery elements, realistic dialogue, believable reactions and behaviors; a favorite that I can re-read many times.
  • [ **** ] Great Read - Highly entertaining and enjoyable, exciting storyline, well developed characters and settings, a few discrepancies but nothing that can’t be overlooked. Some aspect of the story was new/refreshing to me and/or intriguing. Recommended for everyone.
  • [ *** ] Good Read - Solid story with a 'good' ending, or has some other redeeming feature. Limited character development and/or over reliance on tropes. Noticeable discrepancies in world building and/or dialog/behavior that were distracting. I connected enough with the characters/world to read the entire series. Most of the books I read for fun are here. Recommended for fans of the genre.
  • [ ** ] Okay Read - Suitable for a brief, afternoon escape … flat or shallow characters with little to no development. Over the top character dialog and/or behavior. Poor world building with significant issues and/or mistakes indicating poor research. Excessive use of trivial detail, info dumps and/or pontification. Any issues with the story/characters are offset by some other aspect that I enjoyed. Not very memorable. May only appeal to a niche group of readers. Recommended for some (YMMV).
  • [ * ] Bad Read - Awkward and/or confusing writing style. Poor world building and/or unbelievable (or unlikeable) characters. Victimization, gaslighting, blatant abuse, unnecessary violence, child endangerment, or any other highly objectionable behaviors by Main characters. I didn't connect with the story at all; significant aspects of this story irritated me enough that I struggled to finished it. Series was abandoned. Not recommended.